Today is ‘Worldwide Stop The Pressure Day’ The objective this day is to increase awareness about pressure injury prevention and to educate the public on this topic. Please see the link for more info and a short video on statistics. 2023WWPIPD – National Pressure Injury Advisory Panel (npiap.com)
Tonight Pathfinders are hosting UpLift EMPOWER Marketing with Martyn Sibley from Purple Goat Agency – an event you don’t want to miss! Limited spaces for young people with a muscle weakening condition. 📆 Tuesday 7th November 2023 ⌚ 18:00 – 19:00 đź“Ť Online Webinar đź’· FREE đź“ť Sign up – https://UpLiftEMPOWER.eventbrite.co.uk Are you aged 18-30?…
Purple Tuesday is a global social movement and the number one brand for improving the customer experience for disabled people and their families 365 days a year. This includes accessibility and in inclusivity for disabled consumers. Quoted from the ‘Purple Tuesday’ website “The initiative inspires leadership and staff of organisations from all sectors and sizes…
Truthfully, we have been gone, despite being a little quiet, we continue to fight hard behind-the-scenes for formal approval next year for all of the available treatments.
We have received notification that the Physical ability: What is important to you? The study has reached its quota for non-ambulant participants. As well as this they have extended the age range to 2-60 years old. Therefore, please see updated invitation below: Are you interested in participating in two telephone/video interviews to discuss your experience…
Today Biogen provided us with an update on the NURTURE study which was published in Muscle & Nerve1.
Scholar Rock have announced new 36-Month Apitegromab Extension Data which reinforces long-term substantial and sustained improvement of motor function in phase 2 Topaz trial patients with Nonambulatory SMA.
Scholar Rock have announced new 36-Month Apitegromab Extension Data which reinforces long-term substantial and sustained improvement of motor function in phase 2 Topaz trial patients with Nonambulatory SMA.
