2023 Worldwide Pressure Injury Prevention Day
Today is ‘Worldwide Stop The Pressure Day’ The objective this day is to increase awareness about pressure injury prevention and to educate the public on…
UK campaign for access to treatments and support for those with spinal muscular atrophy
What is sma?
A comprehensive guide to what SMA is
and what to be aware of.
Treatment information
Everything you need to know about treatments available now and future.
STANDARDS OF CARE
SMA experts have developed and published consensus guidelines on SMA care.
Latest posts
UpLift EMPOWER Marketing with Martyn Sibley from Purple Goat Agency
Tonight Pathfinders are hosting UpLift EMPOWER Marketing with Martyn Sibley from Purple Goat Agency – an event you don’t want to miss! Limited spaces for…
Happy Purple Tuesday!
Purple Tuesday is a global social movement and the number one brand for improving the customer experience for disabled people and their families 365 days…
We are back!
Truthfully, we have been gone, despite being a little quiet, we continue to fight hard behind-the-scenes for formal approval next year for all of the…
UPDATE – Physical ability: What is important to you? Take part
We have received notification that the Physical ability: What is important to you? The study has reached its quota for non-ambulant participants. As well as…
Biogen on the NURTURE trial
Today Biogen provided us with an update on the NURTURE study which was published in Muscle & Nerve1.
Despite their already reading treatments available the world of science never stops. They continues to be active trials and development on a number of new treatments. Below is the current position to the best of our knowledge of each, and this will be updated as we receive further updates