TreatSMA continues to work with NICE, NHSE and Biogen. We are seeking to expand inclusion if possible based on the recent appeal and campaign that TreatSMA and the community colaborated on together.
TreatSMA and the community have made ITV News and BBC News five times in the last week appealing to NICE and the NHS to amend the current criteria of the MAA of remove it altogether. SMA families have also been pressing their MPs to take action. Please see video clip above of Jacob Rees-Mogg telling it how it is.
— TreatSMA Team