Dear community
We understand there are some difficulties for children with SMA around getting support to shield, therefore alongside community member Irvana, we have written this letter to send to the CEOs of hospitals. Please do let us know your hospital if you are facing issues so we can make sure our letter reaches them.
As community members we also need you to act and send the letter to your MP. You can download a PDF of the letter below.
Urgent letter regarding shielding policy for paediatric patients
TreatSMA team x