Author: Andi Thornton
Update from NHS England regarding risdiplam EAMS
This morning we have received an update from NHS England making it easier to understand who is and isn’t eligible for treatment under the EAMS programme.
Physio with Marion – Waking up the weakest muscles
This week we had another amazing webinar with Marion, this week focusing waking up some of the weakest muscles either with or without treatment. It’s easy to think that because you are so weak you now can’t do anything with a particular muscle or muscle group, but in this webinar Marion shows you just how…
Physio with Marion – Assessments
In this session Marion talks about the different assessment and why they are important not just for professionals but also for yourselves to measure progress especially with treatments.
Physio with Marion – Fingers, arms and hands
In this session we look at all of the different exercises that can be done to help build muscles particularly in the upper body as more people are starting to receive treatment. Really good session, it’s amazing what you can do with a clothes peg and marble!
Cambridge University Hospitals finally approve risdiplam for adults
It’s been a long wait and somewhat of a battle but we are pleased to announce that Cambridge University Hospitals have finally approved the use of risdiplam through the DTC in line with the EAMS guidance.
How did we do it and is it safe?
This is a question many people asking about the Covid-19 vaccine considering it was approved so quickly. MHRA chief executive explains the process in the article below to reassure.
A special Christmas message from Santa Claus
We had a special guest at TreatSMA today, Santa Claus asked to speak to everybody via video conference to share a message to us all. This was live on Facebook but for those who do not follow us on social media please find the video above.
Physio with Marion – Peanut rolls, balls and rolls
In this session Marion talks about all of the different ways you can use that you can use different types of equipment for different types of exercise.