Author: Andi Thornton
How innovative Jake O’Neill and George Tappenden keep in touch while isolating
Two of our very own stars were featured on ITV today (08/04/20) showing how despite isolating in different parts of the country they are still able to keep in touch and have fun.
Goodbye and thanks to a Trustee and good all round bonny lad
It is with sadness that we announce departure of Gary McKie from TreatSMA trustee board.
Information statement regarding the impact of COVID-19 on the Spinraza MAA
NICE and NHS England and NHS Improvement have taken advice from clinical experts and consulted with patient advisory groups (Treat SMA, MDUK and SMA UK) to review the potential impact of COVID-19 on the delivery of the Managed Access Agreement (MAA) and have released the following statement.
Spinraza in higher doses? Why not! A clinical trial is in the works.
A new clinical trial of Spinraza is about to start in the next few months. Codenamed DEVOTE, it will measure the safety and efficacy of Spinraza administered in much higher doses and to a different schedule. Biogen clearly looks for ways to both improve the efficacy and reduce the treatment burden of treatment. The trial…
Information statement regarding the impact of COVID-19 on the Spinraza MAA
NICE and NHS England and NHS Improvement have taken advice from clinical experts and consulted with patient advisory groups (Treat SMA, MDUK and SMA UK) to review the potential impact of COVID-19 on the delivery of the Managed Access Agreement (MAA) and have released the following statement.
Spinraza in higher doses? Why not! A clinical trial is in the works.
A new clinical trial of Spinraza is about to start in the next few months. Codenamed DEVOTE, it will measure the safety and efficacy of Spinraza administered in much higher doses and to a different schedule. Biogen clearly looks for ways to both improve the efficacy and reduce the treatment burden of treatment. The trial…
Advice from clinicians on COVID -19
Many people reached out through their PAG to contact clinicians, and as a result MDUK has compiled the following regarding muscle wasting conditions. please see below for information written and compiled by MDUK which we would like to share.
Advice from clinicians on COVID -19
Many people reached out through their PAG to contact clinicians, and as a result MDUK has compiled the following regarding muscle wasting conditions. please see below for information written and compiled by MDUK which we would like to share.