Author: Andi Thornton
TreatSMA LIVE – A massive success, thank you all
We at TreatSMA would love to thank everyone for participating in Saturdays LIVE SMA DAY. We had a whole array of amazing speakers , sports professionals, worldwide known doctors, professionals in SMA and not forgetting those from the community itself. We also had a few visits from the legendary Geordie sausage!
TreatSMA LIVE – A massive success, thank you all
We at TreatSMA would love to thank everyone for participating in Saturdays LIVE SMA DAY. We had a whole array of amazing speakers , sports professionals, worldwide known doctors, professionals in SMA and not forgetting those from the community itself. We also had a few visits from the legendary Geordie sausage!
TreatSMA attends Cambridge Rare Disease Network summit
TreatSMA were fortunate enough to be invited to the event along with having a stand for people to come and talk to us about our journey fighting for treatments for rare diseases.
TreatSMA attends Cambridge Rare Disease Network summit
TreatSMA were fortunate enough to be invited to the event along with having a stand for people to come and talk to us about our journey fighting for treatments for rare diseases.
MASSIVE, HUGE, UNMISSABLE SMA EVENT EVER! TreatSMA goes live.
TreatSMA are going live all day on Facebook on the 28th September with a huge event jampacked with speakers covering lots of different aspects of SMA, ranging from physiotherapy to science.
MASSIVE, HUGE, UNMISSABLE SMA EVENT EVER! TreatSMA goes live.
TreatSMA are going live all day on Facebook on the 28th September with a huge event jampacked with speakers covering lots of different aspects of SMA, ranging from physiotherapy to science.
Hospitals and adult treatments – we need your help
In a recent update we mentioned that hospitals were going to be asked to submit expressions of interest to provide Spinraza for adult patients. We can now confirm that that request has gone out and it is now down to hospitals to submit to NHS England.
Hospitals and adult treatments – we need your help
In a recent update we mentioned that hospitals were going to be asked to submit expressions of interest to provide Spinraza for adult patients. We can now confirm that that request has gone out and it is now down to hospitals to submit to NHS England.