Author: Andi Thornton
TreatSMA community shows amazing generosity
Recently, acting as part of TreatSMA, Gary McKie (trustee) asked the community if anyone had a panthera chair that a young North East family could loan, to keep their sons arm strength up, as his consultant had recommended sourcing a manual chair.
TreatSMA community shows amazing generosity
Recently, acting as part of TreatSMA, Gary McKie (trustee) asked the community if anyone had a panthera chair that a young North East family could loan, to keep their sons arm strength up, as his consultant had recommended sourcing a manual chair.
Biogen release community statement
Biogen UK has released new community statement with regards to access to Spinraza in the UK. TreatSMA, SMAUK and MDUK have asked important questions and this statement provides some insight in the process and what to expect.
Biogen release community statement
Biogen UK has released new community statement with regards to access to Spinraza in the UK. TreatSMA, SMAUK and MDUK have asked important questions and this statement provides some insight in the process and what to expect.
Party time!!!!!!!!!!
In celebration of the approval of Spinraza the Annabelle Rose Foundation organised a party called the Cirque du Spinraza where many of the community attended on Saturday.
Party time!!!!!!!!!!
In celebration of the approval of Spinraza the Annabelle Rose Foundation organised a party called the Cirque du Spinraza where many of the community attended on Saturday.
TreatSMA reaches out to Roche
TreatSMA visited Roche yesterday to talk about Risdiplam and how we can support them through the approval and appraisal process.
TreatSMA reaches out to Roche
TreatSMA visited Roche yesterday to talk about Risdiplam and how we can support them through the approval and appraisal process.