Author: Andi Thornton
NICE responds to concerns raised
Following the miscommunication from NICE in terms of releasing information TreatSMA, Spinal Muscular Atrophy UK and Muscular Dystrophy UK contacted NICE to express our unhappiness with the communications sent out. We have now received a response which you can read below.
NICE responds to concerns raised
Following the miscommunication from NICE in terms of releasing information TreatSMA, Spinal Muscular Atrophy UK and Muscular Dystrophy UK contacted NICE to express our unhappiness with the communications sent out. We have now received a response which you can read below.
TreatSMA arranges meeting with MPs to follow up Jacob Rees-Mogg’s call for debate.
TreatSMA are asking for those not eligible for Spinraza, to contact MPs and get involved in the debate.
TreatSMA arranges meeting with MPs to follow up Jacob Rees-Mogg’s call for debate.
TreatSMA are asking for those not eligible for Spinraza, to contact MPs and get involved in the debate.
Tickets are still available for this fantastic event.
Come and join us for a night of fun, family, community and celebration.
Tickets are still available for this fantastic event.
Come and join us for a night of fun, family, community and celebration.
A Message from TreatSMA
Now that the new MAA has been released we wanted to share with you the process that we have gone through.
A Message from TreatSMA
Now that the new MAA has been released we wanted to share with you the process that we have gone through.