Author: TreatSMA
Hungary will fund Spinraza treatment
Hungary has agreed to provide Spinraza treatment to all children with SMA.
Thank you to Fairfax Academy
It gives us enormous pleasure, on behalf of everyone in the team here at TreatSMA, to say a massive thank you to the Students and Staff at Fairfax Academy, Birmingham for their generous donation.
Success! NHS relaxes restrictions on Spinraza treatment under EAP
Pressure put on NHS by the UK medical and patient communities bore fruit last week when NHS England finally agreed to amend its Commissioning Policy for Nusinersen Expanded Access Programme so as to include all those with SMA type 1.
Spain agrees to reimburse Spinraza
The Spanish government announced that Spinraza has become available to the majority of people with spinal muscular atrophy covered by the Spanish healthcare system.
Please send us your views on Spinraza treatment
If you or someone close to you are affected by spinal muscular atrophy, please help to advocate for wide access to Spinraza in the UK.
Biogen Releases Statement on CHERISH Data and Plans for New Clinical Research
Biogen has provided the following community statement on the final results from CHERISH, a Phase 3 study of SPINRAZA.
Norway says YES to Spinraza
Norway agreed to fund Spinraza
Please share your views on SMA treatment
If you or someone close to you are affected by spinal muscular atrophy, please help to advocate for wide access to Spinraza in the UK. We ask you to complete a few short surveys on the SMA Support UK website.