Author: TreatSMA
TreatSMA attends the International Scientific Congress on Spinal Muscular Atrophy
On 25–27 January, we were at the International Scientific Congress on SMA.
TreatSMA at a meeting at the House of Commons
TreatSMA members and their children attended a Fast Track Treatment Campaign meeting at the House of Commons.
Spinraza to be available through a Managed Access Scheme
Biogen accounces that Spinraza will be available through a Managed Access Scheme.
NICE will appraise Spinraza for all those with SMA!
The National Institute for Health and Care Excellence (NICE) announced that it will appraise Spinraza as a treatment for all those with spinal muscular atrophy.
Google deprived TreatSMA of access to email and data
Google has blocked the email system used by TreatSMA and paralysed our work.
Demand that Biogen reduces Spinraza price!
Demand that Biogen reduces Spinraza price!
An urgent request to SMA Families living in Scotland
SMA Families living in Scotland are requested to reach out to SMA Support UK in order to take part in an important survey on nusinersen treatment.
Response from NHS England
NHS England sent a disappointing response to the our Community’s letter on access to Spinraza EAP.