Author: TreatSMA
Your amazing #WearYourHurt campaign photos
#WearYourHurt campaign photos. We are an amazing community!
TreatSMA at NICE Conference
It was a very interesting and engaging day for the TreatSMA team at the 2019 NICE Conference in Manchester, where NICE and NHS decision makers listened about and acknowledged our concerns.
We are meeting NICE and NHS today
TreatSMA is talking to NICE and NHS decision makers at a Manchester conference today
Nusinersen super effective in later-onset SMA!
Spinraza demostrated as incredibly effective in types 2 and 3 SMA
“Wear Your Hurt On Your Shirt” SMA Campaign
We are asking the SMA community, friends and family to wear in public on the 7th May a plain t-shirt or top with a personal message to NHS England and NICE telling them we will not wait any longer.
No commercial agreement yet. NICE to discuss Spinraza at another meeting
NICE has not yet been able to recommend Spinraza, and an urgent Committee meeting has been called.
Spinraza EAP opens in Russia
An Expanded Access Programme of Spinraza starts in Russia today.
NICE responds to us
NICE emailed us that they are not able to update us yet.