Author: TreatSMA
TreatSMA reaches another milestone
Another important development in TreatSMA work. Read on.
Argentina approves Spinraza
Spinraza has been made available in Argentina
TreatSMA joins hands with Genetic Alliance to improve the situation of people with SMA
TreatSMA becoming a member of Genetic Alliance.
Cost of SMA care – survey results
First overview of survey results on costs of SMA care.
Farewell to European Medicines Agency
On 28th February we bade farewell to the European Medicines Agency as it relocated from London to Amsterdam.
We told NICE and the world that we need Spinraza NOW
SMA families held a protest in Manchester to demand access to the only effective therapy for spinal muscular atrophy.
Important: The Big SMA Protest on 6th March
On 6th March, we will gather in front of NICE Manchester office to loudly demand access to Spinraza. But there are rules to follow.
UK clinicians publish an open letter about access to Spinraza
UK clinicians publish an open letter about access to Spinraza.