Do you need help with an EHCP?
Those dealing with EHCPs and needing help, guidance or advice these are the opening times of the SOS SEN helpline before they break for the Easter Holidays.
UK campaign for access to treatments and support for those with spinal muscular atrophy
BLOG ARCHIVE
Do you need help with an EHCP?
Those dealing with EHCPs and needing help, guidance or advice these are the opening times of the SOS SEN helpline before they break for the Easter Holidays.
Cost of Living Grant
Yesterday Muscular Dystrophy UK launched a Cost of Living Grant for people living with muscle-wasting or weakening conditions.
Cost of Living Grant
Yesterday Muscular Dystrophy UK launched a Cost of Living Grant for people living with muscle-wasting or weakening conditions.
ZOLGENSMA UPDATE
The pause in access to treatment with Zolgensma in children with type 1 SMA aged older than 12 completed months has been lifted.
ZOLGENSMA UPDATE
The pause in access to treatment with Zolgensma in children with type 1 SMA aged older than 12 completed months has been lifted.
Information about Apitegromab – The new treatment from Scholar rock
Recently the FDA designated Apitegromb for fast tracking as a treatment for SMA. We wanted to provide some additional information about this treatment, read on for more information and trial details.
New SMA Drug in phase 3 trials fast tracked
The US Food and Drug Administration (FDA) has granted Fast Track designation for Biohaven’s new anti-myostatin adnectin, taldefgrobep alfa, to treat spinal muscular atrophy (SMA).
Do you know about the Council for Disabled Children?
TreatSMA is signposting families to the Legal Handbook 3rd edition uploaded by the Council for Disabled Children.