Biogen statement to SMA community re: NICE ACD
Biogen has shared with us their stance on the proposed Spinraza guidance.
UK campaign for access to treatments and support for those with spinal muscular atrophy
BLOG ARCHIVE
Biogen statement to SMA community re: NICE ACD
Biogen has shared with us their stance on the proposed Spinraza guidance.
NICE refuses to recommend Spinraza to treat SMA
Shocking news. The National Institute of Health and Care Excellence officially recommends that nusinersen (Spinraza®) is NOT offered through the NHS to anyone with SMA.
NICE refuses to recommend Spinraza to treat SMA
Shocking news. The National Institute of Health and Care Excellence officially recommends that nusinersen (Spinraza®) is NOT offered through the NHS to anyone with SMA.
Uruguay approves Spinraza
Uruguay approves Spinraza as a treatment for SMA
Uruguay approves Spinraza
Uruguay approves Spinraza as a treatment for SMA
AveXis gene therapy trial in UK
In the next few weeks we are expecting the AveXis AVXS-101 trial to start enrolling. There will be two site centres here in the UK: Great Ormond Street Hospital for Children Contact : hinal.patel@ucl.ac.uk The John Walton Muscular Dystrophy Research Centre MRC Centre for Neuromuscular Diseases. Contact: Anna.peel1@newcastle.ac.uk There will be strict inclusion and exclusion criteria…
AveXis gene therapy trial in UK
In the next few weeks we are expecting the AveXis AVXS-101 trial to start enrolling. There will be two site centres here in the UK: Great Ormond Street Hospital for Children Contact : hinal.patel@ucl.ac.uk The John Walton Muscular Dystrophy Research Centre MRC Centre for Neuromuscular Diseases. Contact: Anna.peel1@newcastle.ac.uk There will be strict inclusion and exclusion criteria…
Adapted Trikes
Please note this is not an affiliated Theraplay post, this is a review compiled by an owner of an adapted trike who has no association to the company and the views are their own. Adapted trikes are a great way to add in cardiovascular / strengthening exercises to your child’s day. There are several places…