UK campaign for access to treatments and support for those with spinal muscular atrophy
Last night after finally finishing my sons physio, standing, stretches, chest physio, toileting putting his orthoctics on, a routine that can take up to two hours before bed I finally got to sit down. I than put the washing on, hung aload out, tided up from dinner, paid a bill online, opened up the mail…
Last night after finally finishing my sons physio, standing, stretches, chest physio, toileting putting his orthoctics on, a routine that can take up to two hours before bed I finally got to sit down. I than put the washing on, hung aload out, tided up from dinner, paid a bill online, opened up the mail…
Roche shared an update on the safety of RG7916.
Roche shared an update on the safety of RG7916.
NHS England has published an Interim Commissioning Policy on nusinersen EAP.
NHS England has published an Interim Commissioning Policy on nusinersen EAP.
Dear Community, During the last few weeks NHSE and Biogen has been discussing the support for EAP. As we know, NHSE current official position is that they are not willing to fund additional auxiliary costs associated with Spinraza administration. Whilst Biogen expressed willingness to cooperate, pharmaceutical companies in general are not allowed to pay doctors…
