TreatSMA featured on charitable.radio

Charitable.radio is an amazing station focused on raising awareness of charities from all walks of life. You can listen on the Internet or using your  smart device by simply asking it to play charitable radio.

TreatSMA will  be featured this afternoon (Sunday) on the Nigel McShine-Jones show on charitable.radio. Our very own trustee Andi Thornton recently was interviewed by the station and answers questions related to the charity and SMA generally. Please do give a listen, but also make sure you support the station which is doing an amazing job at raising awareness of charities. It plays some pretty good music also!

Www.charitable.radio

Latest Posts

  • Calling on all the community to ACT NOW to avoid losing treatments!

    Calling on all the community to ACT NOW to avoid losing treatments!

    Currently, there are two approved treatments for SMA: risdiplam and nusinersen. These treatments were initially approved temporarily under Managed Access Agreements while the NHS and NICE gathered data to assess their cost-effectiveness. Now, as these agreements come to an end, both treatments face a crucial review.

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  • NICE’s upcoming Multi Technology Assessment for Spinraza and Risdiplam

    NICE’s upcoming Multi Technology Assessment for Spinraza and Risdiplam

    SMA UK are proud to join together with Treat SMA and MDUK to bring you this webinar about NICE’s upcoming Multi Technology Assessment for Spinraza and Risdiplam. 2024 sees the end of the managed access agreements (MAAs) for the two treatments. An expert committee will gather to assess the new clinical and real-world evidence, along…

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  • Let the battle begin

    Let the battle begin

    This year the Managed Access Agreement for Spinraza and Risdiplam expires. The MAA was put in place five years ago so the pharmaceutical companies could gather more evidence to resubmit to NICE for approval on the NHS with Biogen extending their MAA by a year.

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