We have received notification that the Physical ability: What is important to you? The study has reached its quota for non-ambulant participants. As well as this they have extended the age range to 2-60 years old. Therefore, please see updated invitation below:
Are you interested in participating in two telephone/video interviews to discuss your experience of Spinal Muscular Atrophy (SMA) and to help us understand what an important change in physical ability would be?
| We are looking for: Individuals living with SMA · Aged 12-60 years old from the United Kingdom (UK) and United States (US) · With a confirmed diagnosis of SMA and are ambulant (able to walk) Caregivers of individuals living with SMA · Aged 18 years or over from the UK and US · Care for an individual who is 2-60 years old with a confirmed diagnosis of SMA and are ambulant (able to walk). |
Are you interested in taking part in two telephone/video interviews to discuss your experience of Spinal Muscular Atrophy (SMA) and to help us to understand what an important change in physical ability would be?
The interviews:
Before the interviews you will be asked to fill in a form with some questions about yourself and a questionnaire used by doctors to assess physical ability in SMA. The aim of the interviews is to understand what changes on the questionnaire would be important and how these changes would impact daily life.
You will be invited to take part in two 60-minute interviews (with breaks as needed), approximately 3-4 months apart.
You will receive £100/$110 for each interview you participate in.
If you are interested or would like further information, please contact:
Email: sophie.wallace@adelphivalues.com
Telephone: +44 1625 57 8200
