RG7916 moves to pivotal clinical trial in SMA types 2 and 3
Exciting developments! Roche’s new experimental drug for SMA is moving to late-phase clinical trial in SMA types 2 and 3.
UK campaign for access to treatments and support for those with spinal muscular atrophy
BLOG ARCHIVE
RG7916 moves to pivotal clinical trial in SMA types 2 and 3
Exciting developments! Roche’s new experimental drug for SMA is moving to late-phase clinical trial in SMA types 2 and 3.
Our SMA Story
Vinnie was born by C section on the 24/03/2015 and he was absolutely perfect in every way but I could never shake that feeling that he was too perfect. Always in the back of my head I had this horrible that something was terribly wrong. By the time he was 4 weeks old I was…
Our SMA Story
Vinnie was born by C section on the 24/03/2015 and he was absolutely perfect in every way but I could never shake that feeling that he was too perfect. Always in the back of my head I had this horrible that something was terribly wrong. By the time he was 4 weeks old I was…
TreatSMA meeting 18 September!
Come and join our meetup on Monday 18 September to talk about access to SMA treatments and what we all need to do to receive it.
TreatSMA meeting 18 September!
Come and join our meetup on Monday 18 September to talk about access to SMA treatments and what we all need to do to receive it.
Day in the life of us
I’m Chloe and mum of three children. No, sorry: Careworker and Medication Administrator for my three children, or P.A. and Diary Coordinator of medical, school and social appointments, or Private Chef trained in diary-free catering and the production of meals to sustain blood sugar when required to help prevent blood sugar drops associated with metabolic…
Day in the life of us
I’m Chloe and mum of three children. No, sorry: Careworker and Medication Administrator for my three children, or P.A. and Diary Coordinator of medical, school and social appointments, or Private Chef trained in diary-free catering and the production of meals to sustain blood sugar when required to help prevent blood sugar drops associated with metabolic…