TreatSMA

EAP started/starting Newcastle Belfast East Dundee Great Ormond Street Oxford Evelina Leeds Liverpool Glasgow Bristol Cardiff Sheffield (August) Working towards EAP Cambridge Birmingham Oswestry Manchester We’re still waiting on responses from St George’s (London) Contacts we have Evelina Childern’s Hospital: Dr Elizabeth Wraige, elizabeth.wraige@gstt.nhs.uk Cardiff: Dr Louise Hartley, louise.hartley@wales.nhs.uk Newcastle: Prof Volker Straub, volker.straub@newcastle.ac.uk Liverpool: Dr…

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Committee for Medicinal Products for Human Use of the European Medicines Agency adopts a positive opinion on Spinraza.

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Committee for Medicinal Products for Human Use of the European Medicines Agency adopts a positive opinion on Spinraza.

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Dear Members of SMA Community, If any of you want to know more about Paris option for type 1 and be up to date with other developments, please get in touch with TreatSMA members by email on treatsma@treatsma.uk. We are working very hard to help you ALL and you must understand it is not just…

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Biogen announced that the Expanded Access Programme for nusinersen will not be extended to SMA types 2 and 3.

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Dear Members of SMA Community, If any of you want to know more about Paris option for type 1 and be up to date with other developments, please get in touch with TreatSMA members by email on treatsma@treatsma.uk. We are working very hard to help you ALL and you must understand it is not just…

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Biogen announced that the Expanded Access Programme for nusinersen will not be extended to SMA types 2 and 3.

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Every month, across the UK, parents are hearing the devastating words from doctors that their baby is extremely unlikely to survive to see their 2nd birthday. That they will helplessly be forced to watch as their baby grows weaker before their eyes, losing their ability to move their legs; their arms; to lift their head; to…

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