Link to the registered Changing Places toilet map
TreatSMA is sharing the wonderful registered Changing Places toilet map link.
Category: Updates
Physio with Marion – Assessments
In this session Marion talks about the different assessment and why they are important not just for professionals but also for yourselves to measure progress especially with treatments.
New Facebook Group, ‘TreatSMA Community’s Physio and Exercise Ideas and Tips’
TreatSMA has launched a new Facebook group called TreatSMA Community’s Physio and Exercise Ideas and Tips
Physio with Marion – Fingers, arms and hands
In this session we look at all of the different exercises that can be done to help build muscles particularly in the upper body as more people are starting to receive treatment. Really good session, it’s amazing what you can do with a clothes peg and marble!
Letter written regarding policy on shielding for paediatric patients
Dear community We understand there are some difficulties for children with SMA around getting support to shield, therefore alongside community member Irvana, we have written this letter to send to the CEOs of hospitals. Please do let us know your hospital if you are facing issues so we can make sure our letter reaches them.…
Joint Committee on Vaccination and Immunisation (JCVI) recommends unpaid carers should be in Priority 6 category for Covid-19 vaccination
We have seen a lot of parents/unpaid carers enquiring whether they’re prioritised for the Covid-19 vaccination. Carers UK issued a press release stating unpaid carers were to be included in priority group 6 for the Covid-19 jab, you can read the full press release here. However please note you must be coded as a carer…
Upper Limb Assessment – downloadable document for 10/01/21 Physio with Marion session
This week, during the webinar, Marion will be using the Upper Limb Assessment. This is available to download below so that during the webinar you can self assess which will help to give you an idea of activities to try and practise. You can download the Upper Limb Scale here
Survey exploring the effects of catching Covid-19 in people with, and carers of people with, SMA
It is felt there is not enough data in terms of covid-19 in Spinal Muscular Atrophy, therefore we would appreciate it if people who have had covid-19 within the SMA community could fill out one or both of these surveys. There are two surveys, one for people with SMA and one for parents/carers of people…