Category: Updates

  • SMA Awareness Month – Interview with Dr Maria Dimitriadi

    SMA Awareness Month – Interview with Dr Maria Dimitriadi

    Have you ever wondered what worms and SMA have in common? No, me neither, until now. Our very own science geek G hosted a webinar with Dr Maria Dimitriadi to talk about that and many other fascinating topics. Another fascinating discussion about the world of SMA from Maria, a truly world-class scientist.

  • SMA Awareness Month – Interview with Dr Maria Dimitriadi

    SMA Awareness Month – Interview with Dr Maria Dimitriadi

    Have you ever wondered what worms and SMA have in common? No, me neither, until now. Our very own science geek G hosted a webinar with Dr Maria Dimitriadi to talk about that and many other fascinating topics. Another fascinating discussion about the world of SMA from Maria, a truly world-class scientist.

  • SMA Awareness Month – Interview with Baroness Tanni Grey-Thompson

    SMA Awareness Month – Interview with Baroness Tanni Grey-Thompson

    We were delighted and truly honoured to have Baroness Tanni Grey-Thompson join us as part of SMA Awareness Month to talk about her life, her experiences, discrimination and answer some of your questions. Such a thought-provoking and and inspirational discussion hosted by our very own Marion, this is a video not to miss.

  • SMA Awareness Month – Interview with Baroness Tanni Grey-Thompson

    SMA Awareness Month – Interview with Baroness Tanni Grey-Thompson

    We were delighted and truly honoured to have Baroness Tanni Grey-Thompson join us as part of SMA Awareness Month to talk about her life, her experiences, discrimination and answer some of your questions. Such a thought-provoking and and inspirational discussion hosted by our very own Marion, this is a video not to miss.

  • Questions and Answers session with Roche about Risdiplam

    Questions and Answers session with Roche about Risdiplam

    We joined a session with Roche earlier this week to ask them questions following their recent announcement about risdiplam. The following FAQs have been checked for accuracy with Roche where they relate specifically to risdiplam. Questions and answers apply to people living in England, Scotland, Northern Ireland and Wales.

  • SMA Awareness Month – MHRA Webinar

    SMA Awareness Month – MHRA Webinar

    A really interesting webinar hosted by our very own Joseph talking to Dan from the MHRA about the regulatory process associated with rare diseases and their involvement in assessing suitability and helping licensing drugs.

  • Questions and Answers session with Roche about Risdiplam

    Questions and Answers session with Roche about Risdiplam

    We joined a session with Roche earlier this week to ask them questions following their recent announcement about risdiplam. The following FAQs have been checked for accuracy with Roche where they relate specifically to risdiplam. Questions and answers apply to people living in England, Scotland, Northern Ireland and Wales.