Category: Updates
SMA, school and covid-19
On Friday evening TreatSMA hosted a webinar with Michelle Woods who is a SENDCo at a primary school in Kent. She has been a primary school teacher for 20 years and a SENDCo for 6 years. Michelle currently works in a primary school with a Special Resourced Provision (SRP) for children with physical disabilities and…
TreatSMA take on their most ambitious SMA Awareness Month to date!
This year, TreatSMA wanted to present a range of topics for the community, but they were also particularly keen to remember and acknowledge those that fought/fight and got the community where it is today, not just in regards to SMA but disability itself. The ongoing battle for equality and disability rights fought by so many should…
TreatSMA take on their most ambitious SMA Awareness Month to date!
This year, TreatSMA wanted to present a range of topics for the community, but they were also particularly keen to remember and acknowledge those that fought/fight and got the community where it is today, not just in regards to SMA but disability itself. The ongoing battle for equality and disability rights fought by so many should…
Physio with Marion
In this session Marion focused on those who have more physical strength and those with type 3. As ever lots of questions and lots of discussion, please do take a look.
Physio with Marion
In this session Marion focused on those who have more physical strength and those with type 3. As ever lots of questions and lots of discussion, please do take a look.
A new phase 2 trial launched by Catalyst Pharmaceuticals
A new trial aimed at patients with type 3 SMA is being launched by Catalyst Pharmaceuticals for those living in both Italy and Serbia. The trial is designed to look at the efficacy of a drug called amifampridine.