We have prepared a statement in response to the recent Roche announcement, specifically relating to the expansion of the compassion access program. Please see below to read the statement.

We know across the world that people have been struggling to receive their Spinraza treatment because of the coronavirus causing significant hospital capacity and safety issues. Roche today have announced that they are relaxing their compassion access program eligibility criteria to help those who have been affected by this. Statement below:

We know across the world that people have been struggling to receive their Spinraza treatment because of the coronavirus causing significant hospital capacity and safety issues. Roche today have announced that they are relaxing their compassion access program eligibility criteria to help those who have been affected by this. Statement below:

Following some confusion in the SMA community Patient Advocacy Groups have reached out to clinicians with questions and with coordination through MDUK we can now offer some insight.

Following some confusion in the SMA community Patient Advocacy Groups have reached out to clinicians with questions and with coordination through MDUK we can now offer some insight.

Two  of our very own stars were featured on ITV today (08/04/20) showing how despite isolating in different parts of the country they are still able to keep in touch and have fun.

It is with sadness that we announce departure of Gary McKie from TreatSMA trustee board.

Two  of our very own stars were featured on ITV today (08/04/20) showing how despite isolating in different parts of the country they are still able to keep in touch and have fun.