House of Commons debate
Hansard official record of the House of Commons debate on Spinal Muscular Atrophy has now been issued.
Category: Updates
House of Commons debate
Hansard official record of the House of Commons debate on Spinal Muscular Atrophy has now been issued.
MPs debate Spinraza access and changes to NICE appraisal processes
Following a few discussions and meetings between TreatSMA and MPs over the last few weeks today has seen the MPs debated the failure to provide Spinraza to all families who needed access.
MPs debate Spinraza access and changes to NICE appraisal processes
Following a few discussions and meetings between TreatSMA and MPs over the last few weeks today has seen the MPs debated the failure to provide Spinraza to all families who needed access.
MPs debate access to Spinraza TODAY!
Today is the day that MPs debate Spinraza access. Please find information below as well as a press package that we would urge everybody to forward to their MPs or press contacts.
MPs debate access to Spinraza TODAY!
Today is the day that MPs debate Spinraza access. Please find information below as well as a press package that we would urge everybody to forward to their MPs or press contacts.
MPs to debate access to Spinraza on Thursday 25th July
Thanks to some individual MPs and families within their constituencies raising the subject of access to Spinraza again in the commons, TreatSMA have met last week with those MPs to voice our concerns over the MAA for ineligible patients.
MPs to debate access to Spinraza on Thursday 25th July
Thanks to some individual MPs and families within their constituencies raising the subject of access to Spinraza again in the commons, TreatSMA have met last week with those MPs to voice our concerns over the MAA for ineligible patients.