Risdiplam Raising SMN Levels in Older Patients in Ways That Seem Durable, Researcher Says of Early Trial Data
SMA New Today recently published the following information from the Jewelfish trial.
Category: Updates
Risdiplam Raising SMN Levels in Older Patients in Ways That Seem Durable, Researcher Says of Early Trial Data
SMA New Today recently published the following information from the Jewelfish trial.
Jake and TreatSMA take campaign to the Houses of Parliament
Jake Ogborne and TreatSMA visited the Houses of Parliament to meet with Jacob Rees-Mogg to highlight his and others’ need for treatment.
Jake and TreatSMA take campaign to the Houses of Parliament
Jake Ogborne and TreatSMA visited the Houses of Parliament to meet with Jacob Rees-Mogg to highlight his and others’ need for treatment.
Team TreatSMA meet to discuss ongoing access to treatment
The core team at TreatSMA, met on Saturday 13th July to discuss ongoing activities into accessing treatment for SMA and also to discuss our future plans.
Team TreatSMA meet to discuss ongoing access to treatment
The core team at TreatSMA, met on Saturday 13th July to discuss ongoing activities into accessing treatment for SMA and also to discuss our future plans.
Family makes emotional video about the impact the new MAA criteria
Jake Oborne and family show the emotional impact being ineligible for treatment has on SMA sufferers. Click below to watch this powerful video.
Family makes emotional video about the impact the new MAA criteria
Jake Oborne and family show the emotional impact being ineligible for treatment has on SMA sufferers. Click below to watch this powerful video.