Following the miscommunication from NICE in terms of releasing information TreatSMA, Spinal Muscular Atrophy UK and Muscular Dystrophy UK contacted NICE to express our unhappiness with the communications sent out. We have now received a response which you can read below.

Following the miscommunication from NICE in terms of releasing information TreatSMA, Spinal Muscular Atrophy UK and Muscular Dystrophy UK contacted NICE to express our unhappiness with the communications sent out. We have now received a response which you can read below.

TreatSMA are asking for those not eligible for Spinraza, to contact MPs and get involved in the debate.

TreatSMA are asking for those not eligible for Spinraza, to contact MPs and get involved in the debate.

Come and join us for a night of fun, family, community and celebration.

Come and join us for a night of fun, family, community and celebration.

Now that the new MAA has been released we wanted to share with you the process that we have gone through.

Now that the new MAA has been released we wanted to share with you the process that we have gone through.