Farewell to European Medicines Agency
On 28th February we bade farewell to the European Medicines Agency as it relocated from London to Amsterdam.
Category: Updates
We told NICE and the world that we need Spinraza NOW
SMA families held a protest in Manchester to demand access to the only effective therapy for spinal muscular atrophy.
Important: The Big SMA Protest on 6th March
On 6th March, we will gather in front of NICE Manchester office to loudly demand access to Spinraza. But there are rules to follow.
UK clinicians publish an open letter about access to Spinraza
UK clinicians publish an open letter about access to Spinraza.
Thousands demand Spinraza to be made available for adults in Croatia
Thousands protest in Croatia demanding wide access to Spinraza.
Turkey starts offering Spinraza to all
Starting 1st February, Turkey decided to offer Spinraza as a standard therapy to all people with SMA.
SMA families take to streets in Ireland to demand access to Spinraza
Hundreds of people took to streets in Dublin in protest against the continuous denial of Spinraza treatment by Irish health authorities.