NICE shares an update on Spinraza appraisal
Today NICE updated us on Spinraza appraisal. The discussions are ongoing, and we need to stay patient.
Category: Updates
Biogen statement re. EAP in England, Wales and Northern Ireland
Biogen has provided an update for the SMA Community on the Expanded Access Programme to nusinersen.
SMA to become a terminal condition again in England and Wales
Tonight at midnight the UK Expanded Access Programme to Spinraza will end for children diagnosed with SMA henceforth, and with it SMA will become a terminal disease again.
Julian Sturdy MP asks the Health Secretary about Spinraza
Julian Sturdy MP has asked the Health Secretary about access to Spinraza treatment.
Final appraisal meeting for Spinraza (nusinersen)
TreatSMA along with other patient advocacy groups, patient experts and clinicians, attended and contributed at the final appraisal meeting for Spinraza (nusinersen) at NICE office on Tuesday 23rd October.
Final appraisal meeting for Spinraza (nusinersen)
TreatSMA along with other patient advocacy groups, patient experts and clinicians, attended and contributed at the final appraisal meeting for Spinraza (nusinersen) at NICE office on Tuesday 23rd October.
TreatSMA Families make final plea inside and outside NICE
Vigil held outside NICE whilst others inside make last desperate fight for treatment.
TreatSMA Families make final plea inside and outside NICE
Vigil held outside NICE whilst others inside make last desperate fight for treatment.