Nusinersen EAP will close for newly diagnosed babies from November
Nusinersen Expanded Access Programme will close for new patients on 1 November 2018, even as those currently in the programme will continue without changes.
Category: Updates
Nusinersen EAP will close for newly diagnosed babies from November
Nusinersen Expanded Access Programme will close for new patients on 1 November 2018, even as those currently in the programme will continue without changes.
Clinical experts and SMA groups lambast NICE on nusinersen guidance
Leading UK physicians and SMA advocacy groups react negatively to the proposed negative recommendation on nusinersen therapy.
Clinical experts and SMA groups lambast NICE on nusinersen guidance
Leading UK physicians and SMA advocacy groups react negatively to the proposed negative recommendation on nusinersen therapy.
Taking our fight for treatment to the media
The SMA Community takes the fight for treatment to the public media.
Taking our fight for treatment to the media
The SMA Community takes the fight for treatment to the public media.
Biogen statement to SMA community re: NICE ACD
Biogen has shared with us their stance on the proposed Spinraza guidance.
Biogen statement to SMA community re: NICE ACD
Biogen has shared with us their stance on the proposed Spinraza guidance.